About
The independently assessed, expert-led Research Grant Initiative Find For Rare aims to improve patient care and management by promoting and recognising research in three lysosomal storage disorders – Fabry disease, alpha-mannosidosis, and cystinosis
The Research Grant Initiative
Find For Rare research grants are designed to support original research projects that aim to advance knowledge in the field of:
Fabry disease
Alpha-mannosidosis
Cystinosis
This includes projects that aim to further our understanding of the rare diseases and how to manage them. For more details on the types of projects eligible for funding, check out the grant scope and application criteria.
Researchers are eligible to apply for grants up to €50,000 to support their project.
All submitted research proposals will be evaluated by the Steering Committee, an independent scientific board of leading experts in the field of lysosomal storage disorders.
Call for applications is now open!
All applications must be submitted to the Grant Office by the application deadline, 31 October 2026.
See more information on the timelines.Downloads
Download the brochure for a comprehensive overview of the Find For Rare Research Grant Initiative
Brochure
Apply for grant
Chiesi
Chiesi Group at a glance
With over 90 years of experience, Chiesi is a research-oriented international biopharmaceutical group that develops and markets innovative therapeutic solutions in respiratory health, rare diseases, and specialty care.
We create shared value for patients, people, the planet, and communities as part of our mission to improve human health and well-being.
We became a Benefit Corporation in 2018 and achieved B Corp certification in 2019, reinforcing our commitment to measuring and improving our social and environmental impact.
The Chiesi Group counts
7,900+ employees.
Chiesi operates in 30+ affiliates and
exports in ~100 nations.
The Chiesi Group has 7 R&D centres: Italy, France, the US, Canada, China, the UK, and Sweden. There are over 780 researchers, with ~25% of revenue invested in R&D.
Action areas:
Chiesi Global Rare Diseases
Chiesi Global Rare Diseases is a business unit created to respond with urgency to the unmet needs of people living with rare conditions – needs that are often shaped by delayed diagnosis, fragmented care, and limited access to treatment.
Rooted in a legacy of care across generations, we work at the speed of need to bridge the gap between scientific possibility and the lives of individuals and families still waiting for answers. Behind every therapy, every initiative, and every partnership, there is a person whose experience matters – and whose voice deserves to be heard.
We collaborate closely with the global rare disease community to address health inequities, reduce the hidden burden of rare diseases, and help build a more inclusive and sustainable healthcare system – one where underserved communities are no longer left behind, and where every person has a clearer path to care, dignity, and a more fulfilling life.
At Chiesi, we are making a rare difference.
We are passionate
about what we do and compassionate towards individuals with rare diseases, their caregivers, and partners
We listen to and understand
the needs of the community that we are privileged to serve, and we aspire to provide it with support throughout its journey
We are committed
to removing obstacles to provide people living with rare diseases with the tools they need. With equal energy, we contribute to the societal imperatives of overcoming disparities and ensuring health for people of all ages
Our rare disease areas of focus:
Inborn errors of metabolism, Ophthalmology, Endo-metabolic diseases, Dermatology, Haematology, and Immunology.
Steering Committee
The Steering Committee is an independent scientific board of 11 leading experts in the lysosomal storage disorders field specialised in Fabry disease, alpha-mannosidosis, and cystinosis.
Steering Committee members:
- Alessandro Burlina, Bassano del Grappa, Italy
- Camilla Tøndel, Bergen, Norway
- Christina Lampe, Giessen, Germany
- Christoph Wanner, Würzburg, Germany
- Dieter Haffner, Hannover, Germany
- Elena Levtchenko, Amsterdam, Netherlands
- Francesco Emma, Rome, Italy
- Joao Goncalves, Lisbon, Portugal
- Katharina Hohenfellner, Rosenheim, Germany
- Karolina Stepien, Manchester, United Kingdom
- Nicole Muschol, Hamburg, Germany
Steering Committee members will review and evaluate the research proposals, meet to discuss the shortlisted proposals, and select the research grant recipients.
Steering Committee members will not evaluate research proposal applications in cases where this is a conflict of interest.
Chiesi will not in any way influence the application, evaluation, nor grant selection process.
