The Rare Disease Research Grant Initiative

The independently assessed, expert-led Research Grant Initiative Find For Rare seeks to support research excellence in three lysosomal storage disorders – Fabry disease, alpha-mannosidosis, and cystinosis – by offering funding opportunities to research scientists and physician scientists from across the world*.

Fabry disease, alpha-mannosidosis, and cystinosis are rare- and ultra-rare lysosomal storage disorders that can lead to severe, life-long medical conditions.^1–3 The wide range and progressive nature of symptoms makes these disorders difficult to diagnose, categorise, and manage.^1–3 Despite notable therapeutic advancements, further scientific investigation is required to advance diagnostic accuracy, prevent disease progression, and improve patient outcomes.^1–3

References: 1. Golfomitsos C, Sengupta A, Prasad U, Gray D. Br J Cardiol 2012; 19:41−5. 2. https://rarediseases.org/rare-diseases/alpha-mannosidosis/ [Accessed: July 2024]. 3. https://rarediseases.org/rare-diseases/cystinosis/ [Accessed: July 2024]

The Research Grant Initiative Find For Rare is organised and funded by Chiesi Global Rare Diseases.

*Please refer to the grant scope and application criteria to learn more about the global regions eligible to submit project proposals.